Amanda Moore

Angelman Syndrome Foundation

BIOGRAPHY

Amanda Moore is the Chief Executive Officer of the Angelman Syndrome Foundation, leading efforts to advance research, improve clinical care, and strengthen family support for those affected by Angelman syndrome. Since joining ASF in 2019, she has expanded its reach through advocacy, collaboration, and innovations in rare disease care.

Amanda’s leadership is driven by personal experience as a mother of a child with Angelman syndrome. She continues to champion community partnerships that create lasting impact for individuals and families worldwide.